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David

@admin active 1 day, 17 hours ago
Really interesting day today at a Sure Start ‘Early Support parents’ workshop. Thanks to Inga and Kirsty for organising – lots of useful information shared and definitely worthwhile going if you are given the opportunity. Couple of interesting points – If you have siblings who regularly attend Young Carers, they can apply for reduced cost […] View
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    David wrote a new post, Nappies! 3 days, 4 hours ago

    Anyone else having this issue?
    We have been told Jacob can only have 4 nappies a day – he needs 8!

    • Profile picture of Mandy
      Mandy replied 2 days, 23 hours ago

      As a result of complaining via PALS, I got a phone call this afternoon telling me that we could try a different nappy from our current one, and that they will be sent out to us ASAP. It’s one we have asked for before, and been told we couldn’t have, as the company that the continence team doesn’t supply them. By complaining, they are suddenly…[Read more]

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    David wrote a new post, Special needs budgets to be controlled by parents 5 days, 9 hours ago

    The BBC have reported that parents are to be given more financial control over support for children with special educational needs, in a major shake-up of the system in England.

    The government says it wants to […]

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    David wrote a new post, New travel booking service for parents of disabled children 1 week, 3 days ago

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    I’m really pleased to announce that I can now provide a travel booking service to all members of and-me.org.uk in partnership with Vale Travel. Whether you are looking to book a simple ferry crossing or a […]

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    David wrote a new post, Families with disabled children wrongly told they face benefit cut 1 week, 4 days ago

    Thousands of letters warning of £500-a-week benefit cap are sent to thousands of households, including families with disabled children that will not be affected

    Charities say that 2,000 families with disabled […]

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    David wrote a new post, Travel Insurance – another option 3 weeks, 5 days ago

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    Holiday Extras have agreed to offer members of and-me.org.uk a 5% discount from their brand new travel insurance scheme for pre-existing medical conditions. Please phone 0871 360 2500 and quote “ANDME”

  • Profile picture of David

    David commented on the post, Holiday feedback… 1 month, 3 weeks ago

    After some searching we have a found a suitable holiday property to rent this summer:
    http://fayencelets.co.uk/ offers single storey accommodation, with private pool and good rates.
    Definitely worth a look.

  • Profile picture of David

    David wrote a new post, Cerebra – Call for Parent Stories 2 months ago

    Cerebra (a charity set up to help improve the lives of children with brain related conditions through research, education and directly supporting the children and their carers) would like to hear your stories […]

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    David posted a new activity comment 3 months ago

    In reply to: Scott commented on the post, Toilets… Hi David, We have four of the changing places toilets in Nottingham, to use them (in Nottingham) you have to register at one of the toilets and you get issued a card, you […] View

    Thanks Scott, sounds like Nottingham have got a good system – hopefully other cities and towns will follow.
    and Welcome!

  • Profile picture of David

    David wrote a new post, Toilets… 3 months, 1 week ago

    One problem that we are starting to face, (now Jacob is 5 this month – and getting bigger!) is finding somewhere suitable to change him – normal toliets just aren’t, shall we say, up to the job! We have found this […]

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    David wrote a new post, Dave Lee – a sad loss 4 months ago

    The Kent comedian and panto star today lost his battle against cancer.
    He leaves a fantastic legacy of support for sick and disabled children. Since 1994 his charity has raised over £2 million. Find out more […]

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    David posted a new activity comment 4 months, 3 weeks ago

    In reply to: Stephanie Pommier posted an update Hello! I hope you all had a wonderful Christmas. I went to see my son in France who has the Fragile x Syndrome. Has any of you heard about it? View

    Hi Stephanie, it might also be worth having a look at the following support site specifically for Fragile X – http://www.fragilex.org.uk/

  • Profile picture of David

    David wrote a new post, Merry Christmas! 4 months, 3 weeks ago

    Merry Christmas everyone!
    Thanks for being part of this amazing community, hope Santa brought you all you asked for!
    David

  • Profile picture of David

    David wrote a new post, Early booking from just £25 deposit! 5 months, 3 weeks ago

    Book your 2012 summer holiday with cottages4you and save 5%. Not only are we offering you a discount but if you book between the 1st December 2011 and the 31st March 2012 you can reserve your next cottage break […]

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    David wrote a new post, Direct Payments 6 months ago

    We had an update meeting about Jacob’s direct payments earlier today.
    There are a number of different ways direct payments can be used such as:

    Help with household tasks to free up your time to look after your […]

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    David wrote a new post, VAT exemption 6 months, 1 week ago

    Some items used specifically for your disabled child can be classed as vat exempt.
    We have just ordered a soft play wedge for Jacob, as this is used for his physio we can claim the vat back.
    The process can be […]

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    David wrote a new post, An inspirational story… 6 months, 1 week ago

    Here is some inspiration for us all – a father in Argentina has built a home-made device which has enabled his seven year old son to walk, defying doctors predictions. Click here to see

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    David created the group Group logo of Foxwood & HighviewFoxwood & Highview 6 months, 2 weeks ago

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    David wrote a new post, The Future of Personal Independence Payment 6 months, 2 weeks ago

    Scope have released a new report that has been supported by 20 leading disability charities.
    The government are looking to reform this payment in 2013 (for people aged from 16), so this is well worth having a […]

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    David wrote a new post, Bond Holidays discount 6 months, 3 weeks ago

    ThumbnailAnother great discount available to and-me.org.uk members…
    Bond Holidays have generously offered a £20 discount on any holiday or short break booked. For further information see our Holidays section

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    David wrote a new post, Blue Badge = Free London Congestion Charge 6 months, 3 weeks ago

    Just got our new Blue Badge through and renewed our congestion charge discount.
    If your child has a ‘Blue Badge’ click here to get your discount. (There is a one off £10 registration fee, but after this renewal is free).

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